Sleepover @ Hotel Kaiser Fontana

Day 14 of Summer Vacation

Good Morning Everyone! oh wiat. It's afternoon.

Well we survived our sleepover at the Hotel Kaiser Fontana. Where the checkin time is 8:30pm and checkout is 7:30am. That is unless your little man wakes up sooner than that!

So preparing for Hayden's Sleep Study took longer than I thought. The boy was amped. I mean how exciting, to be able to spend the night at the hospital! I mean wow! Getting him ready and out the door was like pulling teeth. How come, whenever you have someplace to go and your kids want to go it takes longer to get them ready??? So freshly bathed and in his jammies Hayden and I head out the door and drive out to Fontana for his Sleep Study.

No nap today or for the past few days for the boy. He is wired. Mainly because he doesn't get good sleep and needs those naps. So it's not much of a leap to say he was full of ants in his pants while we were waiting to be checked in.

Once checked in we are walked back to his room where a nice big bed awaits him, easily a queen sized bed in a windowless room. Nice bedspread, looks comfortable. This is when I am told little man gets the bed all to himself and I get the medieval torture device, aka "the chair," in the corner. Yeah, I'm going to be getting some good zzz's tonight.

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Ready for Sleepytime

So Sonia his tech comes in and proceeds to apply all sorts of wires and such things onto the boy. He was covered from head to toe. Several on his head, face, chest, and legs. Each little wire is for a specific region of his body to report a specific topic. heart rate, breathing, movement, brain activity, etc. He thinks it's great fun. Me, I'm wondering how we are going to manage the midnight pee break with all those wires. At which point Sonia tells Hayden to just call out to her when he needs to go and she'll come in to help disconnect him from the machines. Apparently the room has two cameras in it for watching the boy and there is no need for call buttons so they can listen to everything going on as well as see what is happening.

Lights out. The boy is all tucked in. I'm surprised he didn't demand a story or a song to which I don't know what I would have done knowing I would have had an audience. But the boy was really tired at this point and was out within 5 minutes of the lights turning off. I read from my Kindle for a little while since this is a little early of a bedtime for me and then attempted to get some rest in "the chair." My only complaint about the Sleep Center is that chair. I really hated that thing before long.

I cat napped a lot. Listened for a little while to the other people in other rooms. Some poor scared child crying hysterically in the middle of the night. The occasional mumble of people talking in other rooms. I woke whenever the boy moved. Pretty much waited for morning.

His sleep this night was the best sleep he has had in a while. His breathing did drop on a few occasions at which he would gasp but for the most part no seizures. He slept soundly throughout the night. He didn't even wake up for a midnight potty break. Needless to say if we captured a seizure it was very minor, which is a good thing, and a bad thing as far as the test is concerned. I don't know if there will be much to show for his sleep study. Which is a lot disappointing in itself considering his sleep is what brings on everything else. [sigh]

Naturally, promptly at 6am Hayden wakes me up with a bellow of "I gotta go potty!" Um, yeah. The heart is now racing. I'm up! Sonia comes in and Hayden patiently waits for her to unhook him so he can use the facilities. We clean up, pack up, and head home. I'm exhausted for my lack of sleep and crawl into bed with Brian. He finally wakes me at around 10:30 because I must face the day. The boy on the other hand, wide awake and well rested. Go figure.

Now he is sitting in the tub playing away and when he calls me in I'll go in to wash the glue from his hair. So now that part of the odyssey is over. We now have to wait for the results to come back which could take about a four to six weeks. I've emailed his neurologist to let him know to look for it. Now we wait. I'm not very good at waiting...


*****UPDATE*****
Received the results on Hayden's Sleep Study and it came back clean. Naturally. So far every single one of his tests has shown no seizure activity. Even the tests the conducted the day of his Grand Mal 2 years ago. This is getting very frustrating.....

See ya round like a donut!, SoCal Marisa